The Sickle In Africa consortium aims to facilitate research in Sickle Cell Disease (SCD) and the subsequent translation of this research into healthcare and health outcomes. Sickle in Africa is made up of three initiatives : Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan-African Research Consortium (SPARCO) and Sickle Cell Pan African Network (SPAN).
SPARCO: Multinational consortium which is coordinated from a hub at the Muhimbili University of Health and Allied Science. SPARCO aims to develop research capacity for SCD through a multidimensional approach which addresses infrastructure, education & training, provision of longitudinal research data and the translation of research into practise.
SADaCC: An administrative, data standardization and coordinating center for Sickle Cell Disease research and infrastructure needs. Its current mandate is to focus on supporting and coordinating data and communications for a partner research network, SPARCO with plans to expand this support to research groups within SPAN in the future.
SPAN: A network of researchers, clinicians, funders and centers working in SCD which aims foster research and infrastructure development.
Standard Operating Procedures (SOPs), Guidelines and Templates
This platform provides Standard Operating Procedures (SOPs), guidelines and policies developed by the Sickle Africa Data Coordinating Center (SADaCC) in collaboration with the Sickle African Pan African Network (SPARCo). SOPs, guidelines and policies help standardize data and procedures at the SPARCo sites in-order to improve data quality and adhere to ethical requirements of the project. A key aspect about this platform is that each member of the SADaCC and SPARCo consortium will be assessed how well they comprehend the SOP, guidelines and policies assigned to their job description before their can commence their duties as well as after every 6 months.
Webinar (Online Event)
|Title||Date, Time and duration|
|National Heart Lung Blood Institute (NHLBI) Annual Sickle Cell Disease (SCD) Research Meeting 2020 - Virtual Conference||
August 10-12, 2020
9:00 AM - 5:00 PM (EDT)
|SCSSN and NSHBT - Virtual Conference||
Thursday, June 25th, 2020
4:00 pm - 7:00 pm WAT / 11:00 am EST / 08:00 am PST
|Gene Editing Workshop||
Thursday, June 18th, 2020
3-7pm CAT, 4-8pm EAT, 9am-1pm EDT, 8am-12pm CDT, 6-10am PDT, 9pm–1am (SGT)
|Standards of Care developed by SickleInAfrica||
29 April 2020
5PM (Tanzania); 4PM (Cape Town); 2PwM (Ghana); 10AM (Washington)
1 hour (5 mins logging in and introductions, 30-40 mins talk, 15 mins discussions)