This is the inaugural issue of Sickle In Africa, a bi-annual Newsletter for the Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan African Research Consortium (SPARCO) and the Sickle Pan-African Network (SPAN...
The Maze Runner actor, Dexter Darden serves as a spokesperson for Sickle Cell Disease (SCD) for Children's Hospital of Philadelphia (CHOP) and the Sickle Cell Disease Association of America. He encourages young people with SCD to be positive about...
Watch Dexter Darden as spokesperson for SCD
The first SADaCC and SPARCO Consortium meeting was held in Dar es Salaam, Tanzania and was attended by 30 participants with one participant joining remotely from the US via Skype (whenever the network allowed). The main aim of this 1st SADaCC...
Members of the SPARCO Nigeria Site were part of a team of experts who met to include SCD in the World Health Organization Package of Essential Non-Communicable Diseases Interventions for Primary Health Care (WHO PEN). SPARCO Nigeria Site Contributing SCD in the WHO PEN
The Sickle Cell Disease Ontology Version 1.0 is now available - click here to access
The Sickle In Africa consortium aims to facilitate research in Sickle Cell Disease (SCD) and the subsequent translation of this research into healthcare and health outcomes. Sickle in Africa is made up of three initiatives : Sickle Africa Data Coordinating Center (SADaCC), Sickle Pan-African Research Consortium (SPARCO) and Sickle Cell Pan African Network (SPAN).
SPARCO: Multinational consortium which is coordinated from a hub at the Muhimbili University of Health and Allied Science. SPARCO aims to develop research capacity for SCD through a multidimensional approach which addresses infrastructure, education & training, provision of longitudinal research data and the translation of research into practise. SADaCC: An administrative, data standardization and coordinating center for Sickle Cell Disease research and infrastructure needs. Its current mandate is to focus on supporting and coordinating data and communications for a partner research network, SPARCO with plans to expand this support to research groups within SPAN in the future. SPAN: A network of researchers, clinicians, funders and centers working in SCD which aims foster research and infrastructure development.
Standard Operating Procedures (SOPs), Guidelines and Templates
This platform provides Standard Operating Procedures (SOPs), guidelines and policies developed by the Sickle Africa Data Coordinating Center (SADaCC) in collaboration with the Sickle African Pan African Network (SPARCo). SOPs, guidelines and policies help standardize data and procedures at the SPARCo sites in-order to improve data quality and adhere to ethical requirements of the project. A key aspect about this platform is that each member of the SADaCC and SPARCo consortium will be assessed how well they comprehend the SOP, guidelines and policies assigned to their job description before their can commence their duties as well as after every 6 months.
Although care has been taken to provide material and information that is accurate we are not liable for loss arising from reliance on information contained in this site or other sites that may be linked to from our site. The views and opinions of non-Consortium Members that appear on the website do not necessarily reflect the views of the Consortium. The material and information on the SADaCC Website do not necessarily reflect the views of the funders. You agree to use this site only for lawful purposes. If you do not accept these Terms and Conditions, you will cease using this site immediately.